ReConnect: Co-design of resources to enhance connection after Stroke
What is it?
This study aims to create new resources targeting social connection after Stroke, as well as related topics – such as emotional adjustment and communication about Stroke. These resources will be used as part of a service intervention designed to support people who have had a Stroke return to and stay at work.
What involvement is required?
There are two options for participation.
1 – Joining the Design and Feedback Network:
- In joining the Design and Feedback Network you will have the opportunity to provide feedback via email on the resources that are created
- Additional option of attending individual meetings with the lead researcher to go through the resources in more detail (1-3 meetings, 1 hours each, via Zoom).
- Options are voluntary and participants only need to contribute as much as they wish
2 – Applying for the Co-Design Team
- This option is available via application. The application will involve an initial interview (via Zoom, approximately 1 hour) with the lead researcher, a researcher who has lived experience of stroke, and another member of the research team who has no previous connection to any applicants, to discuss your circumstances and interest in joining the team.
- If there are more applicants to the Co-Design Team than positions available, people who miss out on a position will be part of the Design and Feedback Network.
- If you are accepted for a position on the Co-Design Team, you will be invited to attend an additional individual meeting (via Zoom) to further discuss what to expect from the Co-Design Team meetings
- Following this you will be invited to attend 7 group meetings (up to 10 if the Co-Design Team decide they would like additional meetings; meetings are of one hour duration, with meetings scheduled approximately 2-4 weeks apart). These meetings will also be attended by members of the research team who will all have different roles (e.g. leading discussions, taking notes and so on); this will include a researcher with lived experience of stroke.
You are able to indicate which option you are interested in on the study’s consent form.
Who is eligible?
- Stroke Survivor
- Family member/friend/colleauge of Stroke Survivor
- Service provider/clinician for a Stroke Survivor
This study is interested in a range of experiences, opinions and ideas.
For more information or to register your interest contact:
Dr Alyna Turner
Phone: 0437 559 741
Email: a.turner@deakin.edu.au
Web: https://redcap.link/reconnect
